When It Rains, It Pours

When It Rains, It Pours

It never just rains in Cancerland. It pours.

And this week it has done just that for me. Poured, that is. Again.

Chemo and radiation finally had great big ticks next to their names. After nine months, they were finally done.

And then last Wednesday I spent most of the day hooked up to an IV having my wonder drugs, Herceptin and Perjeta infused into me. As I stepped out of the Epworth Day Ward as the late afternoon sun dipped behind the rooftops, I thought to myself ‘Freedom at last. Three weeks of no hospital! Let’s get back to life!’

On Friday I treated myself to a Gunnas’ Writing Masterclass with the feisty and passionate Catherine Deveny. It was my little present to myself; a pat on the back for getting through the gruelling events of the last nine months.

She didn’t disappoint. She was hilarious, inspiring, brutally honest and full of great tips I will definitely take on board as I push myself further away from Cancer Cans and attempt writing beyond the borders of Cancerland. I left ready to ‘Fail while daring greatly’, and take up her challenge to write for an hour a day, four days a week, for four weeks – the Gunnas’ Challenge.

‘It is not the critic who counts; not the man who points out how the strong man stumbles, or where the doer of deeds could have done them better. The credit belongs to the man who is actually in the arena, whose face is marred by dust and sweat and blood; who strives valiantly; who errs, who comes short again and again, because there is no effort without error and shortcoming; but who does actually strive to do the deeds; who knows great enthusiasms, the great devotions; who spends himself in a worthy cause; who at the best knows in the end the triumph of high achievement, and who at the worst, if he fails, at least fails while daring greatly, so that his place shall never be with those cold and timid souls who neither know victory nor defeat.’ – Theodore Roosevelt

As I arrived at my sister’s place that afternoon, buoyed by a day of indulgent food and lots of writing, I noticed my boob was hurting a bit. Nothing crazy, just a weird kind of ache. Now, let me tell you that neither of my boobs, with their hard round tissue expanders in situ, ever feel all that comfortable. They’re always getting in the way, and can sometimes feel a bit sore if I sleep on them strangely or perhaps lift something too heavy. So the fact that one of them was a little achy didn’t flash immediate warning signs to me.

But, as the hours dragged on, my boob got more and more sore. It got to the point where I had to lie down on our couch and couldn’t move without wincing. Something was wrong. The weirdest thing about it all was that the sore boob was actually my ‘good boob’, not the boob currently slathered in burn gel and wrapped in glad wrap. Not the ‘cancerous can’ that tried to kill me, but its innocent twin that got lopped off prophylactically in December so that I could still look somewhat symmetrical. What was going on?

Jay rang my surgeon who suggested it was some torn scar tissue. He advised pain relief until I felt better.

That night, while my brain went foggy under a haze of Endone, my boob continued to worsen. The pain was excruciating – far worse than even childbirth. I couldn’t stand without feeling faint, I developed a fever and began vomiting.

The next morning we rang an ambulance. My surgeon wanted me to get to hospital but I couldn’t walk myself to our bathroom without falling over.

Once at hospital, and the pain and nausea medication had started working, we discovered via a needle aspiration that I had a staph infection, most likely due to the bad boob’s broken skin post-radiotherapy letting in unwanted germs. Apparently these bugs like hiding behind foreign objects, and so they’d taken up residence behind the tissue expander and were having a good old party, making me sick.

It meant surgery that day…They would need to open me up, flush out my chest, sterilise my tissue expander and give me IV antibiotics for a week. I never expected that!

So here I am again. Back in hospital for the week, hooked up to IV, with drains of gross-looking fluid dripping out of me. I woke up this morning to find myself completely nude, from the waist up, sporting what looked like a giant geriatric nappy. I wasn’t happy. No one really should ever see themselves clothed in a nappy at the age of 38, surgery or no surgery. After calling for the nurse for some answers, she giggled and told me it actually wasn’t a nappy (although it sure as hell looked like one), but a special heat sheet to keep me warm.

I’m currently sharing a room with two other cancer patients, both in their eighties, who are farting, belching and talking loudly because their hearing aids aren’t in. They’re already comparing cancers, prognoses, and are completely suspicious of all the doctors and nurses.

It’s going to be a loooong week.

One Burnt Boob

One Burnt Boob

“WOOHOO! You’re finished!” my radiologist whooped this morning, bounding in from behind the thick, radiation-proof concrete doors to untape my chest, and lower the bench I lay on.

She is a bubbly young woman, and has really made the last seven weeks of daily radiation sessions more bearable with her friendly conversation. As I sat up, and reached for my hospital gown, she continued chatting happily about how good it must feel to be finished.

“Think of all the free time you’ll have now!” she gleamed.

I nodded, and smiled.

“Yes, it’s great.”

A minute later I found myself sitting in my small change-room cubicle, staring at my burnt, blistered chest, shaking with silent tears. (God I’ve cried A LOT this year!)

Were they happy tears? I didn’t know. Probably in part, although it feels premature to celebrate, when once again I am left nursing the damage of more brutal cancer treatment; the whole right side of my chest and armpit are red raw, and weeping.

A couple of weeks ago my oncologist joked that my skin looked ‘medium rare’, but today the nurses just grimaced as they dressed it with burn gel and cling-film.

filet burnt

I wonder if it’ll at least fade to a nice, albeit lopsided ‘tan’?

* * * * *

It does feel good to be finished radiotherapy. It is, after all, another treatment phase I can tick off my list.

arvind no celebrate

But tomorrow I start ten years of hormone therapy that will put me into permanent menopause at the tender age of 38, and next week I’m back in hospital for more appointments with my oncologists, plus more tri-weekly infusions of Herceptin and Perjeta…so forgive me for not popping celebratory streamers.

ARGH…I KNOW, I KNOW…

facepalm

SELF PITY ALERT!

I’m just so sick of it all. Actually I think I’m just exhausted. Tired of what feels never-ending to me. It’s nearly September…I’ve been in treatment now for nine months. Just think of all the stuff you’ve done in the last nine months!

I can’t help but think about all the things I’ve missed out on this year. My ‘year of big things’ that never came to fruition is barely even perceptible now, let alone my normal old life. It’s been swallowed up by a black hole of hospital visits, treatment schedules and side effects. Precious time lost forever.

small-violin 2

It’s difficult to convey exactly how I feel without making everyone feel like busting out the violins, but it’s kind of like I’m living a half-life. I’m living, but my mind has lost the trusty autopilot it’s had for 37 years, so navigating each day feels awkward and foreign. Things that were once normal, now no longer are. In fact, there is almost nothing about this life that feels ‘normal’ to me anymore.

There has been a huge shift in the way my mind works, the way I think things through, and go about my day. Once Cancer enters your life, ‘normal’ is altered forever. The normal old Kate that would have once gone about her normal old day freely, now overthinks everything.

There’s the added pressure to enjoy everything more, because I have cancer. There’s the pressure of making the most of every situation, because I have cancer. There’s the stress of not sweating the small things, focusing on what’s important, being mindful, present and grateful for every day. And there’s the sick idiot in pessimistic region of my brain saying, “This might be your last chance.”

It’s totally exhausting. I need someone to come along and pull the plug on my overthinking brain! Switch that normal autopilot back on so I can chillax a little, and just be normal old me.

Scientific Fact or Intuitive Crap?

Scientific Fact or Intuitive Crap?

quack_cartoon

I’ve always held the view that alternative therapies are valid treatment options to use alongside, or at times in place of, conventional modalities. In today’s fast-paced, high-pressure society, there are many times when the answer to a simple health issue can be found in slowing down, taking time out, eating better and exercising more. Not always, but often.

I wouldn’t say I’ve been an active patron of alternative therapists through the years. I have a pretty healthy respect for modern medicine and its fastidious process of evidence-based, peer-reviewed research to substantiate treatment claims. I’m not going to turn away from science unnecessarily.

That’s not to say I’ve never engaged in anything but standard medical care. I have seen the odd Naturopath, had acupuncture at various times, a Kinesiology ‘balance’ with a practicing friend, and used herbal remedies occasionally to combat illness.

However, while I’m willing to give most things a go, I approach everything with a questioning mind, and put a lot of effort into researching the validity of different healing practices. If there’s no proper evidence-based scientific research to back up its declarations, I steer clear. I follow the premise that when things sound too good to be true, they generally are – Caveat Emptor.

Until my Breast Cancer diagnosis, I’d never really had any reason to examine the claims of so many therapies in detail, but having Cancer fills you with uncertainty and conventional treatments prescribed by teams of Oncologists, like chemo and radiotherapy, are scary and brutal. There are no promises that they will succeed either, and besides quoting the latest survival stats, no right-minded medical specialist can give you the survival guarantee you so desperately seek.

It’s a tough road to travel. And all the while, everywhere you look, there are shiny proclamations of ‘natural’, easy alternatives. Ones that don’t make your hair fall out or have a whole host of scary side-effects. Amazing treatment protocols with fancy sounding names, incredible cures unearthed in the depths of the Amazon, wellness regimes and dietary crazes spruiked by smiling celebrities, and conspiracy theories that tempt, confuse, and ultimately mislead.

balmy oils

There are people everywhere proclaiming to have cured terminal disease with nothing but food, or juice, or frigging snake oil and bicarbonate soda, willing to sell their secrets or include you in their ‘wellness crusade’ for a fee. There are apps and cookbooks to buy, health retreats to go on and supplements to take. There are plasma amplifiers, electro-magnetic devices, supplement strategies and spiritual remedies. There is B.S. everywhere.

We Cancer patients are easy prey I guess. Desperate to be well, searching for hope, and struggling daily to push away the fear of metastases and a plethora of unanswerable questions like, ‘Why me?’, ‘What went wrong?’ and ‘What will happen to me?’ It’s easy to capitalise on despair.

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It makes my blood boil.

Selling false hope and unsubstantiated quackery to vulnerable people is not only morally reprehensible, it’s downright dangerous.

Because I am very comfortable with my decision to follow the advice of my surgeon and oncologists and pursue conventional treatments for my cancer, I don’t actively search for alternative therapies or seek out the opinions of practitioners outside my team. I feel like I’m in sound, capable hands. It hasn’t, however, stopped me from wondering about the reason for my cancer and wracking my brain futilely.

Yesterday I stumbled across an article professing to extrapolate on the reasons Breast Cancer occurs, or as the author put it, ‘the reasons we create the Dis-harmony of Breast Cancer’. While there were no proclamations of cure, there was an insane amount of garbage spewed forth by someone professing to be a ‘medical intuitive’, who describes herself as a ‘walking, talking MRI’ and charges exorbitant fees ($185 per half hour) to supposedly ‘use their self-described intuitive abilities to find the cause of a physical or emotional condition’.

Apparently, I ‘created’ my cancer because I don’t LOVE myself enough, don’t view myself as a ‘pure, sensual woman’ was NEGLECTED as a child (by a male figure, because my cancer is in the RIGHT boob), am TOO NEEDY with my partner and I’m RESENTFUL of others.

YUP.

Breast Cancer = Needy and Resentful. My cancer is my fault…or maybe my dad’s…or my bro’s.

rage gif 2

There was more. A lot more, but I found myself reading through a clenched jaw and gritted teeth.

Way to go, lady! What a service you are doing to the cancer community by spruiking your clairvoyant crap! Let’s make cancer patients feel even worse about their plight! Let’s concoct a whole host of wacky reasons for Cancer under the guise of helping and healing.

Take your freaking nipple chakras and internal vibrations and shove them where the sun doesn’t shine. There’s my little bit of intuition for you!

Ugh.

 

For those who would like to read this drivel in full, go here. Feel free to voice your own response on her Facebook page here, although don’t be surprised if your comments are deleted. Apparently any kind of alternate view to hers is unacceptable.

Holy Shit You Look Amazing!

Holy Shit You Look Amazing!

A few months ago, there was not one measly little hair on my scalp. Not one. The chemo drugs had killed off every single hair follicle, and with them, the hairs they contained. I was completely hairless! Everywhere.

Which makes THIS picture pretty fucking fabulous!

 

Hair 2

 

It’s so good it deserves a close up…

hair 1

After everything it has been through this year, I almost find it hard to believe my body is able to recover at all, let alone start doing so this quickly. But ever so slowly, I am starting to see and feel the healing process at work. It is wonderful! Here I sit, a mere six weeks since my last chemo infusion, with a fine fuzz adorning my head. Yes, it might be greyish white and still quite sparse, but I don’t care! It is HAIR!

Hooray for hair!

I want all of you to stop what you’re doing right this minute, find the nearest mirror, and instead of bemoaning your regrowth, your rain-induced frizz or those few sneaky grey hairs, announce loudly, ”HOLY SHIT YOU LOOK AMAZING!”

For optimal levels of self-love, I recommend repeating that process on a daily basis.

I’ve taken it a step further, on the recommendation of funny-girl Zoe Foster Blake, and have popped a sign with that very phrase on it in the middle of my bathroom mirror. No matter how gross I feel, It makes me smile every time I see it!

Holy Shit 1

Life’s too precious to waste feeling crap about yourself. I knew all this before, but now that I’ve been pushed to the absolute brink of self-acceptance and have had to dig really (REALLY) deep to love the face that’s staring back at me in the mirror and the body I no longer really recognise as my own…it’s something I try to actively engage with every single morning.

What’s the point in wasting time on ‘what ifs’ and ‘if onlys’! Believe me, I have said more than my fair share of both in my life, and I’ve spent a lot of 2015 pondering where I went wrong, what on earth I did to bring on Breast Cancer, and ‘WHY THE HELL ME’!

Well…the only meaningful answer I’ve been able to come up with, in all my hours of wallowing in self-pity and questioning the unfairness of a cancer diagnosis is –

WHY THE HELL NOT ME?

I have met so many truly fab women this year, all travelling a similarly tumultuous road to recovery after a diagnosis of cancer. And I can tell you, amongst all the fear and despair, they still amaze me with their optimism and good humour, their ability to shove cancer to the back of their minds and get on with living.

It’s made me realise that the human spirit is a powerful force. We all have a lot in reserve to draw on when things are testing.

I’m off to look in the mirror again!

Kate x

An Exquisite Surprise

An Exquisite Surprise

When was the last time you did something for the first time?

A few years ago, as a full-time stay-at-home mum of three, I felt myself hit a bit of a snag. In the depths of my psyche somewhere, was a small, but very persistent nagging feeling…a sense of inadequacy. While I relished the chance I had to be at home with my kids, I felt myself floundering a little; sort of failing to thrive.

I became keenly aware of the fact that while I spent every day teaching my kids new things, giving them new experiences and encouraging them to explore and try out new stuff, I had stopped doing so myself.

I couldn’t remember the last time I had learnt a new skill, or emboldened myself to step out of my comfort zone, so that year I made it a goal of mine to do both, and within weeks I had started a creative writing class and signed up for an eight-week painting course.

Straight away, I felt inspired and energised! The injection of creative pursuits into each week was like a burst of freshness into my life. I instantly felt happier, more fulfilled and stimulated in a way that I had not experienced in so long.

While the writing course finished up after a term, my foray into painting continued. I loved learning new skills, began experimenting with various techniques and found that painting was a good way to escape life’s routine and surrender to pure creativity. Under the tutelage of local Fitzroy artist, Adriane Strampp, and alongside other fun, creative, like-minded people I began to love painting.

This year, painting has fallen by the wayside and I am missing it desperately. I have dabbled a little on my own at home, but it’s the sense of community and painting alongside others that I have really missed.

Today, as I arrived home from hospital, a parcel was waiting for me on my doorstep. Now, I don’t know about you, but my heart skips a beat when I get anything in the mail that doesn’t resemble an electricity bill, let alone a package! It was enough to make me grin from ear to ear and instantly make my day infinitely better.

Inside was the most exquisite gift, something that bought tears of joy to my eyes as soon as I opened it:

A book titled ‘Paintings For Kate’. A collection of works painted for me by the thoughtful and insanely talented people from my painting class.

PFB

The first page, reads:

‘The paintings in this book have been painted for you Kate, by the students of Painting for Beginners to express their care, support and friendship, knowing that Cape Liptrap holds a special place in your heart, and in the hope that this book will transport you there when you need a break. It has been a pleasure for us to work on this project, keeping you close in our minds and hearts, and in anticipation of your return. This book comes with much love and best wishes from all at Painting for Beginners, wishing you a speedy recovery.”

Beyond that are pages and pages of the most beautiful paintings I have ever seen. Not only beautiful because they are painted by incredibly dedicated, talented people, but so beautiful to me because of what they portray and what they represent. I am continually left astounded by the love and support thrust in my direction this year and to all my painting friends – let me tell you, I will treasure this beautiful book for the rest of my days. My family will adore flicking through its pages time and time again. Already, my children are delighting in your paintings of their favourite places!

What a wonderful gift you have given us! Thank you all, so, so much. I can’t wait to come back to paint with you all soon!

Kate x

For those who would like to look at the stunning paintings and the clever artists behind them, click on the link below:

PaintingsforKate

I Got Ink! Four New Tatts and A Rad Holiday

I Got Ink! Four New Tatts and A Rad Holiday

I have just spent two blissful weeks away from Cancerland. Away from sterile hospital corridors and acrid smelling chemo chairs. Away from blood tests, cell counts and horrible side effects.

Away from being sick. Away from Oncology everything.

Leaving Cancerland has been the best.

Two Wednesdays ago, straight after yet another infusion of Herceptin and Perjeta, we hightailed it to the airport, hopped on a plane and flew far away from cold, old Melbourne. And, despite my concerns, neither my bionic boobs nor my husband’s new metal shoulder set off the airport security either – phew!

For a whole, delicious week on the Gold Coast, we did nothing but bask in the glorious Queensland sunshine (Winter up there is 23 degrees, Melburnians!), play countless games of ‘Uno’ and ‘Pick-Up Sticks’ with our children, and order BIG at the hotel buffet. We rode on rollercoasters, lounged by the pool, read books and had deep, soaking bubble baths.

We even did this:

dolphin

Yep. *Insert big fat sigh of content here*

How great are holidays!

I must say that this one was extra special. The last six months have been completely ruled by my treatment regime and we haven’t had the chance to get away together. The emotional toll on us as a family has been high, too. There have been lots of tears, and many times where Jay and I have been too drained and distraught to pick ourselves up cheerily and be proper parents. Thanks to the warmth and love of wonderful friends and family, we have somehow managed to keep an even keel through the darkness, even if perhaps a little wonkily at times.

We had all but resigned ourselves to a year spent pretty much house-bound, when at my very last chemo appointment we discovered something shiny: a surprising two-week break in my treatment schedule before the onslaught of radiotherapy. My husband booked us a mini-break then and there just in case my doctors changed their minds!

And that week away was EXACTLY what the five of us needed: time to switch off, slow down, and just hang out. Time to swim away entire days, order room service midnight feasts, cackle uncontrollably on rollercoasters together and eat fairy floss for lunch.

It was a time for pure release.

bubble bath family holidays flume ride turtles

Our holiday helped me reset my sails, and prepare for the next step in my treatment arsenal: radiotherapy. Since coming home, I’ve had to snap back into Cancerland pretty quickly.

The first appointment for Radiotherapy (affectionately called ‘rads’ by those in the know), was to front up for a CT scan, measurements, and – wait for it – TATTOOING!

Yuh huh. Never thought I’d be the type to get any ink done, myself, but after my first rads appointment, I emerged sporting four brand new tatts!

These small, freckle-sized tattoos are placed in specific spots on my chest and side to help the radiologists line up the machine precisely each time I go in for treatment. They ensure that the radiation is delivered to the exact spots in my chest and armpit where cancerous cells were discovered six months ago, to ensure it zaps them away for good.

tattoo

For the next six weeks, I will head into the radiation oncology area of the Epworth hospital every day. Treatment itself takes about twenty minutes, but the set-up can be painstakingly slow and uncomfortable. The technicians are fastidious with their work. They measure everything carefully, to the millimetre, making sure I’m in the exact same position every day. They line up my tattoos with funky red lasers and fuss around until they’re all completely satisfied.

So far, I’ve had three doses. Besides a lot of buzzing, beeping and whirring, I feel nothing at the time of treatment. As I progress, I will probably see the area of my right breast and underarm become inflamed (a bit like sunburn). It may blister and peel, but should heal up quickly once treatment finishes.

The scary side of radiation is the list of potential long-term side effects it brings with it. The radiotherapy treatment for cancer involves doses that are thousands of times higher than the radiation you receive from your average xray. Due to that radiation exposure, I will have an increased likelihood of lymphoedema in my right arm, a greater chance of developing leukaemia or a second cancer sometime in my future, and the chance of some scarring to part of my lung. While it’s hard not to get bogged down in scary stats like these, I’m focusing on the here and now, and ensuring we do everything to kill every last Breast Cancer cell in my body.

Here’s to fewer cancer cells, and many, many more holidays!

Kate x

Uncle Fester Rides A Rollercoaster

Uncle Fester Rides A Rollercoaster

Here I am, a week shy of my 38th birthday, and my current celebrity doppelgänger is Fester Addams.

fester addams

Go on, laugh! I do all the time.

And then secretly I cry.

I try and try to put on my brave, but sometimes I crumble.

Some days I can look beyond the bald, beyond my brow and lash-less reflection and feel more fab than Fester, but other days are just plain hard. No matter where I go, or what I do, or how many people tell me I look beautiful, I feel people’s eyes boring into me. I feel the burden of a society whose spectrum of normal I no longer fit. I feel ugly, unsightly, unfeminine.

“No hats, ma’am,” the young ride attendant calls.

I know she is talking to me, but I glance over my shoulder and pretend not to hear. “Excited, Rooey? This is going to be fu-un,” I coo. Maybe if I keep my back turned, she’ll give up and start the ride anyway. I haven’t prepared myself to unveil my baldness in front of a crowd of onlookers and the sudden threat of it is sharp. I wince.

The attendant is now hovering right next to my car, pointing to a sign above us that states ‘No Loose Items’ in bold lettering. I had already read it as we waited in line, but had been hoping it was more of a recommendation, than a rule.

“Excuse me, lady. Your hat – it needs to come off, please.”

I glance up at her and grimace. “Please – can you let me keep it on?”

“Sorry. Ride rule. No hats allowed.”

“But…I have no hair,” I squeak, imploring her to let me go.

She baulks, clearly embarrassed, then bends a little closer and lowers her voice. “I’m so sorry. You’re going to have to take it off. Really sorry, but it’s ride rules.”

I bite my lip and nod softly. To our right, the waiting queue snakes back and forth, four rows deep. Arms drape languidly over railings, faces gaze intently. Here I am in full view of a crowd of onlookers, having to unceremoniously expose myself.

I coil as far down into my seat as I can, and slide off my hat.

Instantly, I hear quiet murmurs break out as the front rows catch a glimpse of the bald woman about to ride the roller coaster; the one-woman freak show.

Tears prick. My face flushes crimson. I can’t look up.

Fortunately, before I am forced to endure any more embarrassment, the ride takes off with a sudden jerk, and whisks me away. We sail up towards the sky and then suddenly barrel down the bright, curved rail. Air streams past my face and my stomach lurches to my chin as we drop into the next turn. We twist and jerk around corners, down dips, pressed sideways in our seats as we screech and gleam around the looping course.

rollercoaster

A minute later we sail to a smooth stop, back at the platform where it all began. I close my eyes, breathe in deeply and smother a laugh. All my previous humiliation has dissolved and my body is now zinging with frenzied relief.

I feel like reality has just collided with the metaphor of my life.

From the carriage in front, both of my boys whoop with glee. I turn around, watching my daughter babble happily, tucked into the safe crook of her Daddy’s arm.

Her eyes, shining with wonderment, catch mine. “That was so fun, Mum. Can we go again?”

We clamber off together, linking arms and smiling broadly. My kids chatter non-stop about how ‘epic’ the rollercoaster was. They don’t notice my missing hat at all.

I wish I was brave enough to leave it off.

It’s Finally Here: My Very Last Chemo!

It’s Finally Here: My Very Last Chemo!

It’s here. It’s finally here. Tomorrow I will have my very last chemo infusion.

jim carrey celebrate gif

Six months ago, sitting in my hospital room, boobless and sore, I was staring down the barrel of a long, gruelling chemotherapy regimen and wondering how on earth I would get through it all. Still dazed by my sudden swerve into Cancerland, and the speed at which my life had unravelled, all I could do was nod numbly as my Oncologist spoke about my proposed treatment and how it was necessary to poison my body in order to purge it of Cancer. Everything I heard and read left me distressed and scared.

It’s a strange process, Cancer treatment. You have to get sicker in order to get better. The day of my Breast Cancer diagnosis I had been for a long morning run, I had even been to see an Asthma specialist at the Epworth and passed his lung capacity test with flying colours. I was, in my mind, a picture of perfect health! Yet, just hours later I was back in the very same building with a referral to see a Breast Surgeon.

Since then, it’s been a long and difficult road. Chemotherapy is toxic, and it has ravaged my body with countless adverse effects: extreme nausea, vomiting, fatigue, muscle and bone aches, insomnia, a constantly dry mouth, changed taste sensations, mouth ulcers, nose bleeds, hair loss, constipation, diarrhoea, nerve damage, tender fingers and toe nails, dry eyes, watery eyes, weight-loss, night sweats, and a very low immunity. Quite a list, isn’t it? In fact, managing the emotional lead up to each infusion, and the physical fall-out that follows has almost felt like a full-time job. It has hijacked my life, taken over my thoughts, stolen my freedom.

chemo sucks chemo sucks 2

So you’d think that I’d be ecstatic to be emerging out the other side, right?

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Well, yes and no. I kind of have mixed feelings.

From a physical viewpoint, I can’t wait to be rid of it! Each time I have gone in for chemo treatment, the smell of the place is so acrid it makes my stomach churn. I watch all the lovely oncology nurses gown up in their purple protective wear, pop on their goggles and gloves before handling the drug mixes and I wince at the fact that while they’re worried about a tiny spill of the stuff, the whole bag of cytotoxic splendour is being pumped through my poor body. The labels on each batch don’t make me feel that great either!

chemo sign

But as each infusion date has been gloriously crossed off my calendar, I count down the hours now, knowing the list of side effects above is mostly behind me. I have made it through the fog and am emerging out the other side, ready to reclaim my lost stamina and get this body of mine moving again. Hair has starting sprouting atop my head again, and although its downy soft, and pure white, it is a small sign that my body is on the mend. If you look hard at the picture below, you might just catch a glimpse of my new fuzz!

kate new hair 3

The flip side of chemo ending is purely an emotional one. Back in January I joked about planning a ‘remission soirée’ to celebrate finishing active treatment. I envisaged partying through to the wee hours with all my favourite people, rejoicing in the idea that I’d kicked cancer to the curb and could get on with my life.

I’ve since come to realise that finishing treatment can actually be a very anxious time for cancer patients. You see, even though chemotherapy is hideous to go through, the impact of its effect on your body, however debilitating, kind of feels good; as if the severity of my side effects is somehow a testament to the drugs’ efficacy. To be released from its guard is scary. Suddenly I am on my own again: Me versus Cancer.

It feels like I’m on the edge of a great precipice about to take a leap of faith, knowing full well there’s no safety net to catch me if I fall. Actually, I kind of feel like this guy, but way less prepared:

Tightrope walker Nik Wallenda walks the high wire from the U.S. side to the Canadian side over the Horseshoe Falls in Niagara Falls, Ontario, June 15, 2012.   (Mark Blinch/Reuters)
Tightrope walker Nik Wallenda walks the high wire from the U.S. side to the Canadian side over the Horseshoe Falls in Niagara Falls, Ontario, June 15, 2012. (Mark Blinch/Reuters)

Fortunately, I’m not completely on my own just yet. After tomorrow, I will continue to head in to the Hotel Epworth for tri-weekly infusions of my targeted therapies, Herceptin and Perjeta (aka the wonder drugs), in mid July I start 6 weeks of daily Radiotherapy, and soon enough I’ll be put on some sort of oral Hormone therapy too. So, for now, I am still in the soothing safety net of active treatment, but without the nasty side effects of chemo drugs. So I guess that is a GREAT BIG WIN, isn’t it?

HOORAY FOR MY LAST CHEMO DAY!

keep-calm-celebrate-last-chemo

In Search Of Zen: Living With Cancer-Induced Anxiety

In Search Of Zen: Living With Cancer-Induced Anxiety

Every one of us will feel stressed at times. Looming deadlines, financial pressures and the day-to-day demands of a busy modern life thrust various doses of stress upon us daily, but, built to withstand small amounts of pressure, we can generally make a few adjustments to compensate for the added strain and get on with it.

I have always been aware that chronic anxiety and depression are debilitating disorders affecting many, many people at various stages of life, yet until diagnosed with Breast Cancer late last year, I had never personally experienced the kind of deep-seated stress, anxiety or gut-wrenching fear that usually accompanies major trauma or a threat to one’s life. It leaves you gasping for air.

The shock of hearing I had cancer, having to quickly prepare for surgery and then line up for each chemotherapy treatment evoked feelings in me so intense I felt as though my brain had short-circuited somehow, that my responses to this new stress in my life were purely instinctive and I was powerless to control them. It has been the most mentally and physically exhausting experience of my life. At times I haven’t been able to eat, sleep or switch off the pain.

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Something For Kate

Something For Kate

I can’t wipe the smile off my dial.

There is extraordinary beauty in this world, and I have been reminded of it more than ever over the past six months. The kindness and generosity that has been thrust in my family’s direction as we navigate the challenges of my Breast Cancer diagnosis has left me feeling more loved than ever before and so, so grateful.

But let me just say that things cranked up a notch last week!

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